Picture above was taken 20 minutes before the surgery----> Today was a long day. Caleb had his muscle biopsy and his tracheostomy at Dell Children's Hospital. The procedure started at 10:45am with signing consent forms and ended around 1:00pm. Paul and I spent several hours last night with Caleb just playing with him-knowing that he will be sedated and paralyzed for at least 7 days.We were already at the hospital today by 9:15am and we left at 11:45pm. In between, we had lunch nearby. Although our son is not "alert," I know he can feel our presence. Whenever his father and I touch him or talk to him, we just know he feels us. We ended up spending the rest of the night beautifying his door.
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